Speak up for ME

Hello

For those that don't know what ME is, these two videos, show you how affects people's lives.

We all fall down.

How ME affects ME.

Miriam

And we all fall down....

Hello

All fall down, is part of ME Awareness for ME Awareness week, I hope they washed the pavement, before people fell off the wall!

Miriam

Want to be on the tele, and more..

And in other television news… are you looking for love?

Channel 4 are looking for people who might might be potentially interested
in taking part in the third series of The Undateables  - coming back for
it’s third series. ‘The Undateables’ follows disabled people and those with
a variety of conditions on their quest to find love. The series will also
aim to explore society’s attitude towards disabled people and how this can
affect relationships.

If you would like to see past episodes, they are on the 4OD website here:

If you are interested in taking part, contact Rakhee.Hindocha@betty.co.uk

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DWP publishes welfare reform toolkit and guidance

A new DWP online toolkit aims to explain the context behind the welfare
reform and provide an overview of all the changes that the DWP will be
delivering over the next few years. It aims to provide users with the
information they need across all of DWP policy areas, examining what is
changing, why these changes are happening and when they are being
introduced. You can download the welfare reform toolkit @ www.dwp.gov.uk

________________________________

…and update their Access to Work Pre-Employment Eligibility Letter

The Access to Work pre-employment eligibility letter is intended to help you
let your employer or a potential employer know that you are likely to
qualify for funding under the Access to Work Scheme. Presenting such a
letter can be crucial in reassuring an employer that just because you have
additional needs or require adjustment, this does not necessarily mean extra
costs to them. The newly updated letter is more user-friendly and can be
downloaded from: www.gov.uk/access-to-work/how-to-claim

Miriam

All fall down

Hello

What? Hundreds of people have been invited to take part in a protest about the devastating disease M.E: ‘ALL FALL DOWN FOR M.E.’ 

When? 2.30 for 3pm Sunday 12th May
Where? Old Palace Yard, opposite the Houses of Parliament, SW1P
Why? For the most misunderstood illness of our times, to raise awareness that:

• M.E. can be very severe & long-lasting, often life-long
• It can strike healthy, happy individuals, particularly our children & young people, out of the blue
• It is a real, physical illness
• Patients & their families suffer disbelief, neglect & sometimes abuse from medical, education & welfare personnel
• We need FAR more biomedical research to discover cause(s), effective treatments & hopefully a cure, before it’s too late.

Miriam

What to expect from your doctor.

Hello

Action for ME, have put together a guide on 'what to expect from your doctor'.

Miriam

We need your help.

Hello

You can help decide what care needs are given, please click on this link, to find out more.

Miriam

Want to help raise awareness and more..

Hello

I have already asked me MP for this, but if you would like to put a stop to the long form, that we have to fill in, in order to receive our benefits, please click here.

Want to  help raise aware of ME, please see below:

Joe from Action for M.E. here. We are making a video aimed at raising awareness of M.E. that will be featured online as part of M.E. Awareness Month 2013, and we’d like to invite you and your members to get involved.

 

Whether you are a patient, a carer, a friend or a family member of someone with M.E., you can help us speak up about M.E. by contributing to our film for M.E. Awareness Month.

All you need to do is film a clip of yourself stating your name followed by the phrase:  “I’m speaking up for M.E. because…”

 

Reasons given so far include “because I have the disease”, “because my loved one has M.E.” and “because not enough is known about it.” Don’t worry if one of those is what you want to say, duplication isn’t an issue.

 

The clip can be filmed on your camera, phone, laptop, tablet or PC and emailed to us, so you don’t have to be the next Spielberg to take part!

 

If you don’t want to video yourself perhaps you would rather email us a picture of yourself, telling us a bit about yourself and the reason you are speaking up for M.E.

 

Please email all submissions to joe@actionforme.org.uk by Thursday 25th April at the latest.

Please note Action for M.E. reserves the right to edit all submissions.

 

We would be very grateful if you could pass this message on to your members. Of course if you yourselves would like to submit something that would be fantastic too!

For more information, visit http://www.actionforme.org.uk/get-informed/news/archived-news/our-news/2013/help-us-speak-up-for-me-awareness-this-may

 

Miriam